We mistakenly thought there were 2 elephants in the room after transplant: Infection and Rejection. We’ve identified another one hiding in there with the other 2. I hope there aren’t too many more in there. The new elephant is despair. Desperation.
Our medication tracking system evolved as Tony’s meds got more complicated. Without a system, he had no way to answer the question: Did I take my meds?
Caregiving is difficult and there are no quick tips! It’s a marathon, rather than a sprint. You’ve got this! #RoguesAreReady
Clinic notes are nothing more than a record of what is discussed when you are at doctors’ visits. When you have a chronic illness and/or multiple doctors, it’s important that you keep your own accurate records of what you discussed.
Find a link for this book in our Amazon Store: CLICK HERE. I first saw this book on the shelf of a pain clinic nurse when Tony was in for an assessment. I looked at it and said, ‘How doctors
Now that you’ve been referred to the transplant clinic, you’re going to find a whole community of caring people you didn’t know existed. But job-one is getting coordinated to get there!